A New Kind of Support. For Every Step of the Journey.
A New Kind of Support. For Every Step of the Journey.
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A first-of-its-kind digital platform empowering people living with Parkinson’s through real stories, expert insight, and meaningful tools for everyday life.
This is Parkinson’s is a first-of-its-kind digital platform created to uplift and empower the Parkinson’s community—through storytelling, expert insight, and everyday solutions. Whether you’re living with Parkinson’s, caring for someone who is, or working in the field, you’ll find real connections and reliable guidance here.
What You’ll Discover Here
What You’ll Discover Here
Real, raw, and hopeful stories from people living with Parkinson’s—shared to connect, uplift, and inspire.
Stay on top of the latest research, new treatments, and breakthroughs in clinical trials.
Share what’s helping, what’s not, and what needs to change in the Parkinson’s journey.
Practical tips, emotional support, and shared experiences for those caring for loved ones.
Attend inspiring talks or invite a speaker to your event to share stories and expert insights.
Explore daily living tools, adaptive clothing, and products that make life a little easier.
Why This Matters
Why This Matters
There are resources out there—but few that feel human, helpful, and holistic.
This is Parkinson’s brings it all together in one powerful, people-first platform.
It Matters to Lisa…
Watch as Lisa shares her journey with Parkinson’s—from the moment of diagnosis to what daily life looks like now. Lisa opens up about the power of storytelling, the importance of connection, and her mission to create a stronger, more supportive Parkinson’s community through open communication and shared experience.
How You Can Help
How You Can Help
We’re in the early stages—and we need you.
With your support, we can build and launch this multi-media platform.
Your donation helps fund:
Platform + content development
Expert interviews + story production
Accessibility features + community tools
Outreach to caregivers, clinics, and support groups
Help us change how the world sees—and supports—Parkinson’s.
Our Founders
Our Founders
Lisa Volenec and Bob Sullivan bring over twenty years of collaboration in television news, specials and projects. Lisa worked as an on-air reporter and anchor and Bob as a senior news and station manager. Over the subsequent years, they have worked together in the same newsrooms and collaborated on numerous projects and initiatives.
Their focus on using their storytelling skills and experience has come together with the This is Parkinson’s initiative. Together they are committed to telling the stories of those with the disease, offering support by building patient communities and working with those equally committed to finding a cure.
Lisa was diagnosed with Parkinson’s 11 years ago, and every day since has been a mix of challenge, strength, and resilience. She continues to juggle a demanding career, the joys and chaos of family life, and the support of close friends—all while facing the ever-changing nature of the disease. Sharing her story has become a powerful outlet, and listening to others reminds her that no one walks this path alone.
Join the Movement
Join the Movement
Together, We Can Make a Difference.
Together, We Can Make a Difference.
We want to hear from you. If you're living with Parkinson’s—or supporting someone who is—your voice can help others feel seen, understood, and supported.
Pick up your phone and hit record.
Or ask a friend or family member to help you capture your thoughts on video. Don’t worry about being perfect—just speak from the heart. Share what you're experiencing, what helps you day to day, and any insights or moments that might help someone else on their journey.
Click here to share your story. Your experience matters.
This is support. This is connection.
This is support. This is connection.
This is Parkinson’s.
This is Parkinson’s.
Thank you for considering support of This is Parkinson’s.
Thank you for considering support of This is Parkinson’s.
Together, we can bring hope, clarity, and empowerment to the Parkinson’s community.
Together, we can bring hope, clarity, and empowerment to the Parkinson’s community.
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