This Is Parkinson’s Podcast – I Have Parkinson’s. Now What? (The First Episode) | Guests: Bob Sullivan, Kris Volenec

Learn about Allison’s journey as she navigates her husband Luke’s Parkinson’s diagnosis and their struggle in finding the right health care. Then as they begin to explore DBS, an experimental treatment puts them on a path with a new hope for their future.

Lisa has an insightful conversation with Donna Parkhurst about receiving her early onset diagnosis on the heels of her mother’s passing from the same disease. She’s turned her story into one of advocacy, helping others on her growing social media platform with honest and raw videos about what it’s like to live with Parkinson’s.

Lisa and her lifelong best friend Dawn—friends since first grade—share a deep, enduring bond as they navigate Lisa’s diagnosis together, with a hilarious best-friend game revealing unexpected sides.

Tim Lockard shares his raw, emotional story of grappling with early-onset Parkinson’s and the struggle to accept a diagnosis no one wants. You’ll discover how he transformed ashes into advocacy, using social media as a lifeline for thousands, creating a movement built on faith, gratitude, and connection. His story is a testament to the human spirit’s ability to adapt and thrive against all odds.

Angie shares her journey as a long distance caregiver for her father with Parkinson’s, highlighting resilience, family support, and the power of community. Her lessons learned are helpful for any care provider and loved one.

Dr. Ray Dorsey, a neurologist and leading expert in PD discusses the environmental causes of Parkinson’s, emphasizing that chemicals in our environment, not genetics, are the primary drivers. He highlights the importance of reducing exposure to these chemicals to prevent and slow the disease. The conversation also touches on the need for advocacy and awareness to create a world without Parkinson’s.